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about us the bone cancer awareness trust was set up by the family and friends of luke bradwell, who passed away on the 3rd january 2012 after a valiant fight with osteosarcoma. we aim to raise awareness of bone cancer to promote early diagnosis, as this is one of the most important factors influencing outcome. the web this site charity news we are working with the bone cancer research trust to achieve this goal. each year in the uk there are about 500 people diagnosed with a form of primary bone cancer. primary bone cancer has a peak incidence between the ages of 10 - 24 , but bone cancer can occur at any age. the most common types of bone cancer for this age group are osteosarcoma and ewings sarcoma . the second most common type of bone cancer over all, after osteosarcoma, is chondrosarcoma, which is more common in middle aged to elderly people. the main symptoms are bone pain , which can come and go at first, but may be more persistent at night, and sometimes swelling of the affected area. these symptoms can be mistaken for a sports injury or growing pains if you or a family member are experiencing any of these symptoms contact your doctor. when symptoms persist it is a good idea to ask your doctor for an x‑ray. symptoms like these often have other causes however early diagnosis of a bone cancer patient is a significant factor influencing results. objectives we want people to be empowered with information on primary bone cancer, in the hope that late diagnosis becomes a thing of the past. the first aim of the trust is to provide bone cancer information leaflets to gp surgeries. on completion, our second aim is to continue the awareness campaign by providing secondary schools with this important information. we hope increased awareness will encourage individuals to seek medical attention sooner, as we believe early diagnosis can save limbs and lives. let's talk about it we are also working with the teenage cancer trust who share similar goals in education and awareness. why is early diagnosis so important? the following quotes are included with the kind permission of nice (national institute for health and clinical excellence) who confirm our understanding of how vital the early diagnosis of a primary bone cancer is for patients. nhs/nice referral guidelines for suspected cancer page 51 - bone sarcomas (osteosarcoma and ewing's sarcoma) (all ages) "limbs are the most common site for bone tumours, especially around the knee in the case of osteosarcoma. persistent localised bone pain and/or swelling requires an x-ray. if a bone tumour is suspected, an urgent referral should be made." nhs/nice improving outcomes for people with sarcoma page 39 - improving diagnosis of bone and extremity soft tissue sarcoma "public awareness of sarcomas is low and many studies have shown that some patients wait a considerable time after the onset of symptoms before seeking medical advice." page 30 - gp information "gps also need a reliable source of information. this would cover a number of areas such as raising awareness of sarcoma; providing information." page 44 - referral delay "diagnostic uncertainty at the point of consultation to primary or secondary care can result in a delay in referral to the appropriate treatment centre. several observational studies reporting referral delay were identified." page 45 - diagnostic delay and outcome "several studies expressed the opinion that the increase in tumour size during a delay in diagnosis has a detrimental effect on treatment options and outcomes in patients with sarcoma." page 13 - background "delays in diagnosis for both bone and sts are common. the median size on presentation for both bone and sts is 10 cm (royal orthopaedic hospital: unpublished data 2005) earlier diagnosis would undoubtedly lead to improved outcomes in terms both of survival and of less-damaging surgery being required." © 2012, bone cancer awareness trust registered charity number: 1147133

URL analysis for bonecancerawarenesstrust.org

http://www.bonecancerawarenesstrust.org/bc.shtml
http://www.bonecancerawarenesstrust.org/donate.shtml
http://www.bonecancerawarenesstrust.org/contact.shtml
http://www.bonecancerawarenesstrust.org/links.shtml
http://www.bonecancerawarenesstrust.org/index.shtml
http://www.bonecancerawarenesstrust.org/ourstory.shtml
http://www.bonecancerawarenesstrust.org/news.shtml
bcrt.org.uk
nice.org.uk

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Domain Name: BONECANCERAWARENESSTRUST.ORG
Registry Domain ID: D164586723-LROR
Registrar WHOIS Server:
Registrar URL: http://www.domainmonster.com
Updated Date: 2016-01-27T04:46:20Z
Creation Date: 2012-02-01T19:02:25Z
Registry Expiry Date: 2018-02-01T19:02:25Z
Registrar Registration Expiration Date:
Registrar: Mesh Digital Limited
Registrar IANA ID: 1390
Registrar Abuse Contact Email:
Registrar Abuse Contact Phone:
Reseller:
Domain Status: clientDeleteProhibited https://icann.org/epp#clientDeleteProhibited
Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited
Domain Status: clientUpdateProhibited https://icann.org/epp#clientUpdateProhibited
Registry Registrant ID: C133881767-LROR
Registrant Name: Jeremy Horsfall
Registrant Organization: Kydoni
Registrant Street: 3 Etty Close
Registrant Street: STAMFORD BRIDGE
Registrant City: YORK
Registrant State/Province: East Riding of Yorkshire
Registrant Postal Code: YO411QP
Registrant Country: GB
Registrant Phone: +44.1759360585
Registrant Phone Ext:
Registrant Fax:
Registrant Fax Ext:
Registrant Email: [email protected]
Registry Admin ID: C133881768-LROR
Admin Name: Jeremy Horsfall
Admin Organization: Kydoni
Admin Street: 3 Etty Close
Admin Street: STAMFORD BRIDGE
Admin City: YORK
Admin State/Province: East Riding of Yorkshire
Admin Postal Code: YO411QP
Admin Country: GB
Admin Phone: +44.1759360585
Admin Phone Ext:
Admin Fax:
Admin Fax Ext:
Admin Email: [email protected]
Registry Tech ID: C133881770-LROR
Tech Name: Jeremy Horsfall
Tech Organization: Kydoni
Tech Street: 3 Etty Close
Tech Street: STAMFORD BRIDGE
Tech City: YORK
Tech State/Province: East Riding of Yorkshire
Tech Postal Code: YO411QP
Tech Country: GB
Tech Phone: +44.1759360585
Tech Phone Ext:
Tech Fax:
Tech Fax Ext:
Tech Email: [email protected]
Name Server: NS.MAINNAMESERVER.COM
Name Server: NS2.MAINNAMESERVER.COM
DNSSEC: unsigned
URL of the ICANN Whois Inaccuracy Complaint Form: https://www.icann.org/wicf/
>>> Last update of WHOIS database: 2017-07-15T21:08:20Z <<<

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  REFERRER http://www.pir.org/

  REGISTRAR Public Interest Registry

SERVERS

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  ARGS bonecancerawarenesstrust.org

  PORT 43

  TYPE domain

DOMAIN

  NAME bonecancerawarenesstrust.org

  HANDLE D164586723-LROR

  CREATED 2012-01-02

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NSERVER

  NS.MAINNAMESERVER.COM 79.170.40.2

  NS2.MAINNAMESERVER.COM 79.170.43.3

OWNER

  HANDLE C133881767-LROR

  NAME Jeremy Horsfall

  ORGANIZATION Kydoni

ADDRESS

STREET
3 Etty Close
STAMFORD BRIDGE

  CITY YORK

  STATE East Riding of Yorkshire

  PCODE YO411QP

  COUNTRY GB

  PHONE +44.1759360585

  EMAIL [email protected]

ADMIN

  HANDLE C133881768-LROR

  NAME Jeremy Horsfall

  ORGANIZATION Kydoni

ADDRESS

STREET
3 Etty Close
STAMFORD BRIDGE

  CITY YORK

  STATE East Riding of Yorkshire

  PCODE YO411QP

  COUNTRY GB

  PHONE +44.1759360585

  EMAIL [email protected]

TECH

  HANDLE C133881770-LROR

  NAME Jeremy Horsfall

  ORGANIZATION Kydoni

ADDRESS

STREET
3 Etty Close
STAMFORD BRIDGE

  CITY YORK

  STATE East Riding of Yorkshire

  PCODE YO411QP

  COUNTRY GB

  PHONE +44.1759360585

  EMAIL [email protected]

  REGISTERED yes

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